I’m a fifty-something single, childless Englishwoman who had a successful career as an IT consultant until I burned out shortly after the millennium fireworks. I have a bundle of neurological disorders which, although not life-threatening or usually visible to the casual observer, are debilitating and disabling. I’ve spent the last ten years trying (and failing) to get back to normal, now I’m trying to accept that I’m going to have to live with this shit for the rest of my life.
This blog is going to be about how I live with ME (myalgic encephalitis) and how I live with me (myself) in a world which misunderstands disability through chronic illness and assumes that everyone has a family. I’m going to try to be as truthful and realistic as possible, so there will be swearing, sulking and self pity as well as strenuous efforts to be positive and improve my life.
My interests include writing, photography, art, reading, gardening, the natural world, history and the seaside.