We are bombarded with messages about the virtues of hard work, striving and being busy. Even holidays are often packed with activity and goals – see the sights, find special places to eat, take photographs and post about our awesome experiences on social media. Just lying in the sun is spoken of as “working on your tan”.
It’s really difficult to go against all that cultural conditioning and totally absorb the fact that the most important, productive work a person with ME/CFS can do is to REST. I’m still grappling with the conundrum of how to get enough rest whilst running my home and dealing with daily necessities, but I think I’m making some progress.
Unfortunately it’s clear that reducing my screen-time is beneficial, so I can’t spend as much time as I’d like writing about the process I’m going through at the moment. But I’m making hand-written notes and I’ll share my thoughts when I can.
In other news I’m going to have an intravenous iron infusion at the hospital in a few weeks time to boost my serum ferritin level. Hopefully this will take care of any fatigue that is due to anaemia and, if I’m really lucky, it might reduce my Restless Leg Syndrome (RLS) symptoms too.